This was written by Heather Thompson and submitted to Share for the July/August newsletter.
Mine may not be a gracious or popular viewpoint, but after all the songs of Christmas left me feeling like “peace to the world” or “heavenly peace” was being forced down my throat amidst feeling the least serenity of my life, I settled down after the turn of the year on a mission of what it would mean for me to find freedom from even a small part of my emotional turmoil. This was the first holiday season after my daughter, Makenna, died September 1, 2012. Having to experience all those family-oriented holidays starting with Halloween through the New Year within four months of her death added extra stress to an already stressful season for me. Grief in our extended family has been “complicated”, so there were many emotional barbs to navigate through over the holidays that did not allow for harmony between us, in addition to my own absence of inner peace in missing Makenna terribly. I spent time alone; I spent a lot of time hugging her holiday dress. Sometimes I hugged her ashes. And my mother had an angel that held her picture as the tree topper at my parents’ house where we spent the Christmas holidays. We tried to incorporate Makenna’s memory in the ways we could, but her father and I were acutely and painfully aware she was not physically there.
Mine may not be a gracious or popular viewpoint, but after all the songs of Christmas left me feeling like “peace to the world” or “heavenly peace” was being forced down my throat amidst feeling the least serenity of my life, I settled down after the turn of the year on a mission of what it would mean for me to find freedom from even a small part of my emotional turmoil. This was the first holiday season after my daughter, Makenna, died September 1, 2012. Having to experience all those family-oriented holidays starting with Halloween through the New Year within four months of her death added extra stress to an already stressful season for me. Grief in our extended family has been “complicated”, so there were many emotional barbs to navigate through over the holidays that did not allow for harmony between us, in addition to my own absence of inner peace in missing Makenna terribly. I spent time alone; I spent a lot of time hugging her holiday dress. Sometimes I hugged her ashes. And my mother had an angel that held her picture as the tree topper at my parents’ house where we spent the Christmas holidays. We tried to incorporate Makenna’s memory in the ways we could, but her father and I were acutely and painfully aware she was not physically there.
Once we came back
home, I was given the opportunity to re-center and revisit my never-ending
battle for tranquility with respect to Makenna’s death. My first step was
changing my employment status to build in time I needed to pursue pregnancy and
infant loss causes. I made a decision to end the familial hostilities that had
been weighing heavy on my heart. I started a scrapbook of Makenna’s life. I
made small gifts of companionship for some loss moms that are remote penpals
and friends. I also followed up on very important letter I had written to the
hospital where Makenna was born. In this letter, I explained how I had come to
Labor and Delivery the night before Makenna had been found with no heartbeat. I
elaborated on how, since that time, I have found the more “could” have been
done, but how more is not “required” (by ACOG) to be done, so I realized that I
had no recourse. However, that was not what my email was about. My email was
about how, after the hospital and my caregivers had failed us so that night in
L&D, after Makenna was born, and during our stay at the hospital that they
also had not informed us of the Certificate of Birth Resulting in Stillbirth
(CBRS) being available in our state. I was missing information that not only
validated us as a family and verified my daughter’s existence, but that also
would have made my battle to not lose my short-term disability and maternity
leave benefits much less traumatic, if not non-existent. Since I had no legal
documentation, my employer had considered my status as having had “a medical
procedure” rather than the birth of a child.
I had not heard
back from the hospital in six weeks and needless to say was not very happy
about it. I contacted them again, and this time my email was followed by a
return phone call. And two emails. I ended up speaking to a risk manager who
told me that the hospital had not been aware of the law. Now I must tell you,
this hospital is part of a large hospital system in the Washington, DC metro
area that takes pride in winning “best in the region” types of awards. Despite
being this caliber of hospital and this law being in effect in our state for
years, the hospital staff had never made themselves aware. So, she let me know
that they were convening a hospital system-wide obstetric panel to address
providing this information to families experiencing stillbirth. I asked to
attend the meeting. I also raised some additional changes that I would like to
see from the hospital with respect to patients reporting decreased fetal
movement and families experiencing stillbirth. I am waiting to receive her call
next week.
Some would say
finding peace is to be or become quiet, but I found peace in not staying quiet.
I know the process has just begun to affect this change to provide information
on CBRSes to families that have been affected by stillbirth. But the beginning
of that dialogue brought me more peace than I have found thus far in my grief
journey. I hope we all can find peace through winning those battles, those
small victories. I hope you can find calm after the storm, in your way, and if
even only for a moment.