Wednesday, January 18, 2012

Autumn Whispering

The following was written by Carol Koessel, in which she expresses her grieving and creative ways of healing. 



When we lost our baby to a miscarriage, my partner and I were crushed. There was such a feeling of loss, and so little to do. We knew the baby had died, and we chose to let nature take its course and let the baby come on its own time rather than have surgery to remove her.   

During that period of waiting, my partner Rick spent many hours in the shop in the garage working on something. After several days, he came and showed me a beautiful little pregnant goddess figure he had made of redwood burl to put our baby in. A tiny little coffin, but so beautiful and sweet it hardly reminded me of the death we’d had to endure. The thought of burying the beautiful little box he’d worked so hard on sent me back into tears.

After carrying the baby for 10 days, I could not bear the grief anymore. We decided to have the surgery to remove the baby. It never occurred to me to ask for the baby’s remains as it was all so overwhelming. We returned home and lay in bed holding each other and cried. My arms felt so empty, as did our hearts.

A few days later, I created a tiny little baby out of light pink beeswax to place in the little box Rick had made. Autumn Whispering’s spirit now resides in that little box on a fluff of lamb’s fleece. It is our reminder of our baby and the love we shared for her.

Rick’s woodwork was something he needed to do on his own, alone. It was his time to grieve and spend his private moments with the dreams, hopes and memories of our baby. For me, I wrote. I wrote poems, letters and journal entries. I keep a little memory book for our little Autumn. The writing was so healing for me. It helped me to remember the gift of her short time with us and the gift she will always be—a little light of hope in our hearts.

Autumn came in mid-September
Like a whisper in the breeze
Barely making herself known
To those still caught in summer
For me she was as real
As the sweet smell of
And the fiery of
Early fall
Autumn came and changed my heart
Whispering her name
Gently in my ear
Holding promises of what could be
The season ended much too soon
As did the dreams and hopes
Held in the wind
But never in my arms
Always in my heart
Spirit never
Love carries on 
Regardless of the season

Monday, January 16, 2012

Crazy Like a (Perfectly Normal) Bereaved Parent: In Defense of Rick and Karen Santorum

Perinatal death is in the news again, as people react to the story about Rick and Karen Santorum keeping their dead newborn son with them until he was buried.  Once again, there are two opposing camps. On one side are the bereaved families and medical professionals who understand and embrace this behavior; on the other side are those who are uninformed and as a result, question the Santorums' judgment. This month, my friend, co-author, and frequent conference speaker Amy Kuebelbeck is my guest blogger, shedding light on this foreign terrain and skillfully adding to my efforts to build bridges of understanding and sensitivity.
By Amy Kuebelbeck
Republican presidential candidate Rick Santorum and his wife, Karen, have been vilified in recent days for how they handled the death of their premature baby in 1996. Much of the criticism has been uninformed, some of it heartlessly cruel.

According to this 1997 story in the Philadelphia Inquirer, Karen Santorum underwent fetal surgery to try to correct a birth defect in their developing baby. She developed a life-threatening post-surgical infection, which triggered premature labor. Their son, Gabriel, was born too prematurely to survive. He lived for two hours and died in their arms in the middle of the night.

The couple kept Gabriel in their hospital room for the rest of the night and brought his body home the next morning, keeping vigil with their older children until holding a private funeral at home and burial later that day.

Some TV pundits recently opined that spending this time with Gabriel's body was "crazy" and "weird." Online commenters piled on, typing snarky comments that were much worse.
They are wrong.

Granted, many Americans are ignorant or squeamish about birth and death. But here are two key facts:
Spending time with a baby's body after death is normal and healthy, and giving families the opportunity and support to do so if they wish is now the evidence-based medical standard of care. See this position statement from an international collaboration of parent advocacy groups, this information from the Mayo Clinic, or these recommendations from the American Pregnancy Association.
Involving siblings also is considered normal and healthy, even for babies born very prematurely, like the Santorums' baby. A human being at 20 weeks' gestation looks remarkably well-developed, just small. Any child born alive is legally considered a baby, not a fetus; all states require the reporting of a live birth at any gestational age. And most expectant parents view their child as a baby, not a clinical "fetus," whether born alive or not.

Some resistance to the idea of spending time with a baby's body is rooted in outdated thinking about miscarriage, stillbirth, and infant death. As childbirth became medicalized beginning in the early 20th century, the subject became taboo. In a misguided attempt to protect parents from grief, doctors and nurses typically refused to allow parents to see a baby who was stillborn or dying, and parents were advised to forget about the baby and have another one. The bodies often were buried by the hospital in common graves or disposed of as medical waste. Mothers and fathers were deprived of their only chance to parent their child. Perhaps caregivers meant well, but for many parents this approach caused long-lasting grief and emotional trauma.

Fortunately, beginning in the 1970s, most U.S. hospitals have now adopted more enlightened practices. In part because of the loving work of parent advocates whose profound loss was minimized or ignored in the past, many newly bereaved parents are now encouraged to hold their child's body and to view that tender act as healthy and natural. They are invited to create memories with their child: to bathe their baby, give their baby a name, and take photographs. (See the work of photographer Todd Hochberg and Now I Lay Me Down to Sleep.) Nurses help parents collect priceless keepsakes such as footprints. The baby's body is treated with respect, and caregivers acknowledge the parents' emotional need to affirm their baby's existence. Organizations such as Share Pregnancy & Infant Loss Support, the Pregnancy Loss and Infant Death Alliance, RTS Bereavement Services of Gundersen Lutheran Medical Foundation, Sands UK, and the MISS Foundation continue to do pioneering work in advocating for parents and providing training for caregivers.

Spending time with the baby's body at home is less common, at least in the United States. The Santorums were ahead of their time in doing so, thanks to Karen Santorum's professional experience as a neonatal intensive care nurse, whose job included caring for families experiencing death. In some other cultures, keeping watch over a loved one's body at home is the norm, and it's leaving the body alone at a morgue or funeral home that would be considered "crazy" or "weird." But home funerals and wakes are quietly returning in the U.S., as described in a recent story on National Public Radio. Although legal requirements vary, it is legal in all U.S. states to provide at least some aspect of loved ones' care after death, according to home funeral advocacy groups.

The logistics are relatively simple for a baby. Our book, A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief (Johns Hopkins University Press, 2011), includes poignant stories from several families who brought their babies home, either for a few hours en route from hospital to funeral home or for the entire vigil until the funeral and burial or cremation.

For parents, who have already nurtured their child from conception through birth and death, reclaiming centuries-old traditions of caring for the dead in the intimacy of home can be another meaningful way of caring for their baby. Research has found that bringing the baby's body home for viewing helped parents with their grief.

Those who can't imagine doing any of this because they haven't experienced this heartbreak should count themselves fortunate. Those who have experienced it can imagine it all too well. For those yet to come, because others had the courage and compassion to fight outdated thinking and practices, their profound loss will be just a little easier to bear.

:: Amy Kuebelbeck is co-author along with Deborah L. Davis, Ph.D., of A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief. She also is author of Waiting with Gabriel: A Story of Cherishing a Baby's Brief Life and is editor of www.perinatalhospice.org, a clearinghouse of information about perinatal hospice and palliative care for parents and caregivers.

Tuesday, January 10, 2012

Stitch by Stitch, Little By Little, Heart and Soul Begin to Heal

This article was written by Heather Lammert-Sparks. For more articles on healing, click here to download our latest newsletter, Creative Ways of Healing.

After 3 years of trying to conceive, our dreams had come true.  This past February we found out I was expecting our first child.  As an artist and art teacher I began to dream of making and creating many handmade treasures for our baby.  One of the first things I began was a crocheted blanket of a soft, variegated yarn of snow white, lemon yellow and a sunny yellow-orange.  My husband, Kevin said it looked like “scrambled eggs”.  Every morning and evening, when I was not nauseous or exhausted I crocheted…single, double, double…over and over and over. 

On Tuesday, April 24th I was 8 weeks along and began bleeding.  I immediately knew something was wrong.  I knew too much about what could go wrong.  I continued to work on the blanket and hope our child would hold on.   On April 29 my body let our baby go, I miscarried our first child, Charlie.  The bleeding was so bad that I had to be taken to the ER.  I took the “scrambled eggs” blanket with me, hoping this was all a bad dream and I would wake up.  The next day I put my work in progress into the antique dresser I had purchased for our baby along with the ducky gown from Nana and Papa, handmade ducky bib made by Grandma Joy and many presents from friends and family. 

A few days later I saw Charlie for the first time, with his tiny curved red body and the hint of an arm developing.  I could not bear to flush my baby down the toilet.  I knew I had to do something special.  I saved him in a glass jar and slept with him that night wrapped in his blanket.  The next morning I sat with him and read him my favorite childhood book, The Velveteen Rabbit like my mother would do when I was sick as a child.  I sang him Twinkle, Twinkle Little Star.  Then I started to crochet a small basket made of a soft green, cuddly yarn to bury my baby in.  When I finished I went outside to my backyard, dug a small hole being sure to remove all of rocks to create a soft bed.  I gently placed Charlie inside the cuddly yarn and laid him in the soft dirt.  I asked Mother Earth to watch over him and take care of him for me and I slowly covered him with the earth saying goodbye. 

Over the next several months I found myself opening that drawer to run my hand over Charlie's blanket dreaming of my child and the mother I should have been.  It continued to sit unfinished while I thought of someday finishing it, for our future children, so they would know and never forget the sibling they should have and would have had. 

Saturday, November 26 should have been Charlie's due date.  I had been dreading the day, the day that should have been the happiest of our lives.  The day our first child
should have entered this world.  The day we would become parents.  The day we would have begun our family. 

Late that afternoon and I was alone and not sure what to do with myself.  All I could do was cry and cry and cry……….a river of tears.  I opened the dresser drawer; read through all of the sympathy cards, looked at all of the handmade gifts and soft baby clothes and then I came to Charlie's unfinished blanket.  

I pulled it out of the drawer and ran my hand over the stitches and decided at that moment I would begin crocheting again.  I marked my last stitch, the end of a dream, with a small piece of gray yarn tied in a bow. 

While I continued to crochet I talked to Charlie.  I told him how much we loved him, how much he was wanted and how I needed him.  I asked him to help my heart and soul begin to heal. 

As an art teacher I continually tell my students how art heals, art saves lives and when we don't know how to deal with life, when we have no one to talk to and when we are lost making things with our hands helps us find our way.  Since then I have decided I want to make Charlie's blanket for mothers who have also lost their first child.  Crocheting has brought me a tiny bit of peace and a healing I have been so desperately seeking.  It has become my morning ritual.  I make my coffee, sit in my rocking chair and continue to work on Charlie's blanket.  Tears flow; I dream of Charlie and imagine rocking my baby wrapped in the scrambled eggs blanket……single, double, double….stitching together piece-by-piece, little by little, my broken heart and soul. 

Wednesday, January 4, 2012

Politics and Grieving Decisions

In light of the election quickly approaching, recent headlines focused on Rick Santorum's choices he and his wife made after the death of their son.  Click here to view a video clip on Rick's response to Alan Colmes' hurtful words about their personal decisions.

Wednesday, December 28, 2011

Expressive Arts: Using Your Hands to Heal Your Heart

As we embark on the New Year, this article, written by By Rachel Faldet, M.A.W. may provide some insight to you.

One Valentine's Day afternoon when I was in my mid-30s, I sat cross-legged on an oriental rug in our living room.  On my lap was a baby quilt of calico blues and greens, madras plaid purples and reds.  During January, I had sewn together squares, triangles, and borders by playful whim.  Finished with tying the flannel backing to the cotton front with strands of embroidery thread, I was examining my work.  The edges weren't bound, but the gift was nearly done.  The quilt – big enough for a toddler to snuggle in while listening to a good-night story – was for my sister's winter newborn.                                                                                                                          
    Earlier that week I learned that my pregnancy was over, and the doctor suggested that I wait for my body to miscarry naturally.  I had deeply wanted my child  -- and still did.                                                                                                                                
    When I think of that bittersweet holiday in the early 1990s, much of it is a blur, but for the image of my bereaved self threading a darning needle, pushing it through three layers of cloth and batting, cutting and tying thread in knots, and starting the process again.  Reeling from an ultrasound that showed no heartbeat at twelve weeks gestation, I turned to my hands.
    Consider your hands.  Look at them.  Move them.
    Working with your hands can help you navigate emotional turmoil.  Your hands can help you reach a place that University of Chicago psychologist and author Mihaly Csikszentmihaly calls “flow.” Through extensive research, he explored the question of how people can help themselves feel happy when their lives are full of problems and struggle.  He advocates the idea that when people are in emotional pain, they need to do something to actively take them out of sadness for a while.  In Flow:  The Psychology of Optimal Experience, Csikszentmihaly says, “One of the most frequently mentioned dimensions of the flow experience is that, while it lasts, one is able to forget all the unpleasant aspects of life” (58).
    In the months and years after my second miscarriage, I confronted my sorrow with sewing supplies and with paper and ink.  Quilts for winter warmth at our house, and baby quilts for gifts occupied my hands and mind.  I shaped words into prose, sorting through my experience for myself and eventually creating a book containing the voices of many bereaved parents.  Over time, expressive arts helped heal my wounded heart.
    Expressive arts -- such as gardening, painting, following a cross-stitch pattern, sewing, woodcarving, soldering stained glass into jewel-like objects, knitting, writing, singing, playing an instrument, beading, or forming vessels from wet clay – can have soothing and therapeutic power.   When using handwork to help you cope after losing a child, what you create with your hands doesn't have to be perfect, or even good.  It doesn't matter if the end result is beautiful or if it is rustic.  What matters most is the doing itself. It's a way to put some control on an uncontrollable situation.  It's a way to offer tribute to the child.  If you end up with something usable and lovely – like a necklace of iridescent beads interspersed with Bali silver or a painting of brilliant orange-red poppies – that's a bonus.
    Rilla Esbjornson, a founder/leader of a Share group in Montana, can testify to the importance of using your hands in coping with grief.  On a Christmas morning her son, Joshua Michael, was born by emergency C-section and died two hours later.  The baby's lungs were not developed.
    In the bleak winter months after Joshua's birth and death, Esbjornson “spent hours watching soap operas and crocheting an intricate fisherman's afghan, cocooning myself within a grief work that was utterly overwhelming.”   After finishing three-fourths of the afghan, she realized that she had miscounted the stitches.  She “ripped out row upon row of stitches, the undone fiber entangled with my grief.  I crocheted the afghan twice before I got it right.”
    As a teacher who works with college writers, my world revolves around using writing as an expressive art.   In Bird by Bird: Some Instructions on Writing and Life, beloved author Anne Lamott says to inexperienced and experienced writers, “Tell the truth as you understand it” (226).  I'm drawn to this notion because that's what you do when you work with your hands – as writers or crafters or fine artists – even if you don't consider yourself creative by nature. You try to shape your experiences and ideas into forms that speak to yourself and/or to others.  You try to make sense of your     experiences – the good and the sorrowful.
    The act of writing offers you records of your thoughts:  informal, unshaped thoughts that you would never show another person or formal, shaped thoughts to offer to readers.  After each of my miscarriages, I wrote informally, often slouched at my desk in the dark hours of night, retelling the story privately to myself using pencil and paper.  After my second miscarriage – which spiraled me into serious depression – I wrote a much-revised, polished piece.  It seemed public, I felt a sense of accomplishment, and I craved to read shared stories.  What had others experienced?  How did my feelings connect with theirs?

That essay became the inspiration to put together – with the help of my friend Karen Fitton -- the anthology Our Stories of Miscarriage. Writing about our own experiences after our pregnancy losses was healing for us, and we believed that others who had miscarried had used writing in their grief work, too. We gathered essays, journal excerpts, and poems from bereaved parents across the country. This chorus of voices acknowledges the emotional pain of miscarriage; the pain that lingers after the physical pain is gone.
Some of the contributors to Our Stories of Miscarriage talk about using their hands to help their hearts.  In journal excerpts titled “Lily in the Garden,” Deborah L. Cooper talks about being a gardener and bereaved mother. In early September, while digging in the garden she daydreams about “my little red-haired girl.  Only seems right to give her the name of a flower -- Iris, Rose, or Lily” (24).   Several weeks later, she miscarried.
 In Cooper's October 17 journal, a month after her miscarriage, she says, “Lots of labor has gone into my garden these past thirty days.  When a woman's body gears up for having a child, there are incredible stores of energy building within.  The flower beds have become my decompression chamber to bleed off that energy, along with my grief and pain.  All the fortitude, the stamina, and the effort associated with childbearing have been forced out through my fingertips into the soil of my garden.  If ever there were fertile hands, green thumbs.  No one knows she's out there…Lily in the garden” (25).
Cooper, through her writing, chronicles and figures out the truth of her experiences.  She crafts her words so they can connect well with others – even if her readers would never consider gardening as a way to deal with emotional pain.
In Listen to Me:  Writing Life into Meaning, Lynn Lauber offers insights about the healing capabilities of writing.  She says, “A death is still a death…but writing about it can provide a certain catharsis, a way of putting it in its place.  By allowing emotional release, writing can help us to handle the anguish of bereavement and loss” (50).  Lauber, who gave up her newborn for adoption when she was a teenager, says “Writing about pain doesn't banish it, but it can sooth it, 'rinse' it…Deep writing can pull you away from your troubles and concentrate your energies in a creative flow” (51).  It's hard not to notice that on page two of the introduction, Lauber says that she never saw her infant daughter because the “policy of the unwed mothers' home” didn't allow that. Her concept of  “rinsing” surely is based on personal experience.
Lauber's ideas about writing as healing certainly apply to other expressive arts.  Substitute “drawing” or “knitting” for “writing.” The notion works.
The people whose ideas I've woven into this essay speak from personal experience.  Like them, I'm not advocating that writing one essay or planting a cluster of tulip bulbs or crocheting one crooked afghan or sewing a quilt will make the pain in the heart of a bereaved parent magically disappear forever.  You never forget the children of your heart.  But I am advocating that by using your hands in creative -- perhaps even in unfamiliar -- mediums, you have an opportunity to help a heart that is spilling over with sorrow.  Seek that place of “flow” where you experience a respite from sadness, as part of your grief journey.
Sometimes the desire to try handwork will come from you – the one suffering.  Sometimes, though, caregivers need to guide individuals to consider using wet clay, Austrian crystals and Bali silver, batik fabrics of sea-green teals and ruby-reds, oil paints and pastels, glass pieces reminiscent of rose windows in European cathedrals, paper for words and cutting, ribbons and mother-of-pearl buttons to fasten to art quilts, basswood for carving figures, and soft periwinkle yarn from Australia to knit into warmth.
Sometimes solo work is best; sometimes group work with its social aspects is best.  Maybe you'll delve into a project immediately after you know the child died, trying to find some respite from consuming grief.  Maybe months or even years later you will feel compelled to push some lingering sorrow through your fingertips.  Or maybe the expressive arts are not for you.  Only you can know.
The Valentine's Day quilt I created before and after I learned that my baby had died in utero is faded from sunlight and washing.  My sister's daughter Kate, its owner, is fourteen this winter. Using my hands, instead of stilling them, was the right choice for me when my world collapsed:  sewing and writing helped me cope with my intense longing for the child of my heart.
 That's not to say that I didn't cry frequently.  I did.  A tangle of overwhelming feelings of loss and grief were often my companions.   Sometimes I felt like I couldn't put on my coat and boots to walk out of my house in the snowy, bitterly cold mornings.   And waiting to miscarry naturally had turned into an emergency room midnight nightmare.  But that much-used quilt of calicos and plaids – the work of my hands and my sorrow -- is a celebration of Kate's life and a tribute to the cousin she never had.
Consider your hands.  Use them.

Wednesday, December 21, 2011

Duggar Family Loss

Thought we would share a supportive article written by Deborah L. Davis from the Psychology Today blog addressing the grief of the Duggar family. Deborah L. Davis, Ph.D. is a developmental psychologist who writes books that support parents through crisis, such as the death of a baby, premature birth, and making life-and-death medical decisions. She has also written about medical ethics, perinatal bereavement care, and parenting in the NICU for medical texts and national organizations, informing and supporting health care practitioners who work with these families. Click here to read.

Monday, December 19, 2011

Coping with the Holidays While Grieving



Christmas has always been a time for family. But when you feel like a part of your family is missing, it can be a particularly difficult time of year. Although it has been thirteen years now, I vividly remember our first Christmas after Bret died. He was born with angel wings in August 1995, but his original due date was November 30. Therefore, we had planned on having a new baby with whom to celebrate Christmas with that year. That Christmas, I worried that my emptiness would swallow me.
In the past, I relished our tradition of opening up a nice bottle of wine, cranking up the Christmas carols on the stereo, and helping our son put as many lights and ornaments on the tree as we could without toppling it over. That Christmas, we continued our tradition for our son's sake, but my heart just wasn't in it. Everything took on new meaning that year. Remembering that it was baby Jesus' birthday just reminded me of the baby I lost. The angel we always put on top of the tree gained new significance—I prayed an angel like that one would be watching over my baby. Shortly after Bret died, we were touched to find a teddy angel ornament that was dressed in blue. That Christmas, it was the last ornament we put on the tree, and many tears flowed that night as we ached for our baby boy to be with us. I dreaded Christmas day, not wanting to revisit my pain.
But like most other anxious experiences, the time leading up to the event was worse than the day itself. On Christmas morning, I began to find solace in the symbolism of the season, and I found a lot of comfort in our little blue teddy angel. I felt as though Bret was there with us. Losing Bret made me cherish my son and husband even more. It turned out to be one of the most meaningful Christmas seasons I had ever experienced.   
The most important tip for handling the holidays after a major loss is to be gentle with yourself, and do what feels the most comfortable. Here are some other suggestions:
  • Acknowledge that Christmas is coming. As much as you may want to avoid it, you can't.
  • Try not to “float” into Christmas. Be deliberate in choosing what you would like to do.
  • Avoid thinking about what you “should” do. You need to do what is right for you instead of feeling obligated. Decide to do what you can manage and let your friends and family know. There are no “right” or “wrong” ways to celebrate the holidays.
  • Make Christmas a “season” rather than a day. Trying to do too much on Christmas Eve and Christmas Day will put too much pressure on you.
  • Don't take on too much. Decide on your priorities, including baking, decorating, sending greeting cards, or having a large family dinner. Are these things that really need to be done? If so, perhaps others can assist you.
  • Set times for the things you really want to do. If you don't schedule it, it probably won't happen.
  • If you plan to shop, create a list ahead of time so it is ready for when you feel up to it. Or you may consider catalogue shopping.
  • Realize that Christmas won't be the same. Honor your feelings and don't pretend you are happy if you are not. The holidays may increase your feelings of sadness. It's okay. Share your feelings with your supportive family and friends.
  • Try altering your Christmas traditions, and create new ones, if that feels comfortable. Or you can just change the schedule of your traditions. For example, if you are accustomed having a large dinner on Christmas Day, perhaps have it on another day instead.
  • Honor your baby. For example, you may hang a special tree ornament, or burn a special candle in his/her memory. Another suggestion is hanging a stocking in which family members can put notes expressing their thoughts and feelings. You may also donate a gift to charity in memory of your baby, or the money that you would have spent purchasing gifts for your little one. Remembering is healing.
  • Attend a special candlelight ceremony or church service. (A list of services is included in on our website at http://www.angelwhispers.ca/)
  • Take care of yourself. Create a balance by making time for socializing and time alone. Get plenty of rest, because the holidays can be very draining. Exercise, eat well and take care of yourself spiritually.
  • Remember that time and love from a relaxed you is the best gift for your family and friends.
  • Having fun will not dishonor your baby. After all you have been through you deserve some happiness. Allow yourself and your family to take pleasure in the holidays. Wouldn't your baby want that?
And as hard as it may be, keep in mind that you will come to enjoy Christmas again in the future. May the meaning of Christmas be deeper, its friendships stronger, and its hopes brighter as it comes to you this year.
*Reprinted with permission from the blog Angel Whispers of Hope http://angelwhispersofhope.blogspot.com/

Friday, October 7, 2011

Sharing Awareness

By Rose Carlson

I always love reading and hearing about what others do in memory of their babies. While I am fortunate to have a job that allows me the opportunity to spread awareness of pregnancy and infant loss issues on a daily basis, I have also had the opportunity on many occasions to see what an impact Share and my own experiences have on people in my personal life as well. I teach workshops and speak to different groups in our community about Share and what we do. I write materials that go into our bereaved parent packets. I teach workshops at the twice-yearly Sharing and Caring training for caregivers and new Share group leaders. However, simply because I have had losses myself, I have been able to be a support to friends and family many times over the years.

Friday, August 26, 2011

Catch 22

By Maggie Stockmann

How many kids do you have? Is she your oldest?

Such a simple question with such complicated answers. All that goes into deciding how to answer – Will I see this person again? Are we in public? Am I strong enough to tell the truth? Am I strong enough to give the quick happy answer? Compromise?

Wednesday, August 17, 2011

Still Thankful for Longing

By  Marilyn Guggenheim

I take great comfort from this passage in Edwidge Danticat’s memoir Brother, I’m Dying:

When my daughter was born, her face blood-tinted, her eyelids swollen with tiny light pink patches that Colleen the midwife called angel kisses, her body coiled around itself as if to echo the tightness of her tiny fists, I instantly saw it as one of many separations to come. She was leaving my body and going into the world, where she would spend the rest of her life moving away from me.

Monday, July 11, 2011

Grieving While Parenting

By Rachel Cone

Surrounded by laughter and squeals of delight in the playground with my son Samuel, a nearby parent asks the seemingly simple question, “Oh, is he your only child?” My mind starts racing through all the different ways I can answer that question, but I quickly remind myself that I don't know this parent whose question is clearly intended to start a friendly conversation. “Yes,” I answer softly.

Friday, June 24, 2011

Quotes

By Rose Carlson

I will love the light for it shows me the way,
yet I will endure the darkness because it shows me the stars.
~Eskimo Proverb

Monday, May 9, 2011

Mother's Day

By Jodi Martinez

I remember the first Mother's Day as a bereaved mom of Daniel, born still, and Jojo, miscarried five months later. I had been anticipating what would be a very difficult day for me. My husband being an airline pilot was away and I was home alone. I decided that I would spend the weekend with my mom so it wouldn't be so lonely. The Friday before, I packed a bag and headed to my mom's house. On my way, I realized I had forgotten something so I headed back home.  When I arrived I found a bouquet of flowers and a box of chocolates at my front door. I opened the card and it read, "Happy Mother's Day! Love, Daniel and Daddy." I felt overwhelmed with emotion and tears ran down my face. I felt such a presence of the little souls we had lost. I was completely honored and grateful that my husband acknowledged me on Mother's Day.

Wednesday, April 27, 2011

Come to the Window & Look

By Diane Ackerman

During periods of crisis, grief or uncertainty, we all need to find enriching ways to transcend. Worry can narrow our focus, but reconnecting with nature and our senses opens it up again. The world we take for granted wobbles with mysteries and sensory delights: How astounding that we share the Earth with aromatic lilies and iguanas and Portobello mushrooms! When we pause to sense them, we become wonder-struck and experience a richly satisfying frame of mind that- for lack of a better word-we call joy. Wonder is a bulky emotion. When you let it fill your heart and mind, there isn't room for anxiety, distress or anything else.

Wednesday, March 30, 2011

Moving Forward

By Hannah Stone

As a three time survivor of pregnancy loss, I know all too well that the words "moving forward" do not equal "letting go."

Thursday, March 17, 2011

Forgive Them, For They Know Not What They Say (Or Do)

By Brian Henry

When we lost our daughter Caroline, we gained a world of perspective we never wanted.

Most people lead a life blissfully ignorant of pregnancy loss. Many of our friends and family had no idea what it was like to suffer this type of loss, so it stood to reason that they also had no idea how to react when it entered their lives.

Tuesday, March 1, 2011

What About the Children?

By Maureen Day

I have only a few memories of my sister, Patti; really just glimpses that I recall… jumping rope in the kitchen and getting in trouble, laughing on the couch, seeing her sick lying on my mom and dad’s bed. Then, she was gone. I was only 4 years old when she died at the age of eight, unexpectedly from Reye Syndrome - sudden brain damage occurring from the use of aspirin to treat chicken pox. I didn’t understand any of this, of course, at the time. I only knew she was gone and so were her pictures and that every time I said her name,

Wednesday, February 23, 2011

Enjoying the Small Things


By Rose Carlson

I regularly read a blog called Enjoying the Small Things. It is written by a gal who lives in southern Florida with her husband and two young daughters, one of who has special needs. This blog writer has a really great way with words as well as a sunny outlook on life, and she often writes posts about the “small things” she stops to take notice of in her daily life. I’ve been reading her blog for nearly a year, and many times, she has inspired me to do the same…to stop and notice the seemingly insignificant details and events of life, take note of them, and most of all, remember and write about them. And that’s what this

Tuesday, February 15, 2011

Daniel, Jo Jo, Joseph & Zachary

By Jodi Martinez

The death of my first child, Daniel Joseph, had to be the most horrific experience of my life. In 2007, my life was wonderful. I had just gotten married; I had a great job, and was expecting my first child. Then at the end of August I found myself in the middle of my worst nightmare. One minute changed my life forever. I found out that my son had Hydrops and the doctors told me that he had a 1% chance of living. Sadly, on September 18, 2007, he was stillborn at 29 weeks.

Tuesday, January 25, 2011

Gavin & Parker

By Kayla Schisler

Losing a child is undoubtedly the toughest thing a parent has to go through. There is no word to explain the pain you go through while grieving for your child/children. Your life is forever changed. I lost my twin boys, Gavin and Parker, on April 4th 2009 at 22 weeks. They lived about thirty minutes, but were too young to survive. It was devastating. I always felt like I was put on this earth to be a mother. At the age of twenty, I never thought I would have to endure that much pain and grief.