Sunday, August 10, 2014

Kaleidoscope


This beautiful article was written by Share's Program Director, Rose Carlson.

One of my favorite things about my job at Share is a burial service and ceremony we host four times each year for babies who were miscarried at three of our local hospitals. It is one of my favorite things because I know how much something like this would have meant to me many years ago when I experienced my own early losses, and I do all I can to make it memorable and meaningful for the families who attend. Over the years I have planned and attended this ceremony, I have been incredibly blessed to meet so many parents and their extended family members who have shared countless touching stories with me—stories of their own losses and how healing it would have been for them to also have a service such as this. It is held at a local funeral home/cemetery, and while each grave is not marked, there is a monument of a kneeling Rachel from the bible next to a plaque that reads, “Our hopes and our dreams lie here.” 
I have always loved that. It is so fitting for someone who has experienced the death of a baby, especially early in pregnancy. Oftentimes, others do not understand the depth of grief a parent feels when a baby dies early in a pregnancy, and this plaque says it all—because not only has a baby died, but the hopes and dreams the parents had for that baby, perhaps from the moment the pregnancy was confirmed, died as well.

Our summer service was a few weeks ago. It is a simple, short ceremony that consists of poems, songs performed lovingly by a bereaved mom whose son died 13 years ago, comforting words from one of our hospital chaplains and a graveside balloon release. This time, as I listened to the speakers and poems and songs, for some reason, I found it hard to hold back tears. It is rare that I cry at this ceremony, but when I do, it is usually because there is someone in attendance whose situation reminds me of my own. More typically however, I hold off my tears until I am in my car on the way home. That was not the case on this particular day…I didn’t know the story of anyone who was there, yet I found myself fighting tears anyway, especially when I looked at one young couple who was especially distraught, crying loudly and holding each other tightly. So that others wouldn’t see that I was crying, I looked down at the floor.

As in most funeral homes, at least those I have been in, the décor is fairly ornate. I have been in this funeral home many times, not only for the Share burial service, but also for the funerals and calling hours for people I have known as it is one of the most “popular” funeral homes in my city. But on this day, as I stared at the floor, I noticed something I never paid attention to before: The patterns on the carpet. There were several different shapes scattered about in shades of green, burgundy and gold, and they reminded me of the varying patterns in a kaleidoscope. The more I stared at my feet, and the more I examined the details of the carpet, the more my mind drifted, and I considered the ways a kaleidoscope is similar to grief and life after ones baby dies.

A kaleidoscope contains many different pieces, colors and gems, and while the pieces and colors stay the same, even a minuscule turn of the wheel causes each little fragment to combine in a way that makes something unique and unexpected. 

As I stared at the carpet, I thought about how the same can be said for grief. The “parts” are often the same even though life has completely changed. People in one’s life are the same-- friends, family members, acquaintances, neighbors, coworkers. Situations and circumstances are likely the same--going to the grocery store and Target and preschool and the park and evening walks. I thought about how even though the same “parts” are always there, one little twist or turn of events can cause those parts to tumble and change into something completely different from what appeared before the twist.  I thought about how when you turn the end of a kaleidoscope, some patterns and configurations are prettier than others, and you never know what you’re going to see. The same can be said for grief:  Sometimes, the twists and turns reveal something you do not like, something that angers you even. Other times, the twists and turns reveal something beautiful that you weren’t anticipating. And, most definitely, when you are in the depths of grief, you never know what to expect from the twists and turns each new day brings.

When I was at home later that afternoon, I couldn’t get the thoughts of a kaleidoscope out of my mind, so I sat down at my computer and began Googling to see if there is some symbolic meaning in kaleidoscopes.

Well, lo and behold, there is!

I read a handful of articles, all of which discussed metaphors that relate to kaleidoscopes. I could connect most of them to what parents undergo after the death of their baby, and I began to feel less crazy for the thoughts I had about kaleidoscopes as I stared at that colorful kaleidoscope-y carpet.

New beginnings emerge from the breakup of past forms

Wow. How true is that?
 I’m not sure there is anything that causes a new beginning for a person more than the death of a child does. Over and over I have read, been told by so many bereaved parents, and even learned myself from firsthand experience that life is often abruptly divided into “before” and “after.” While the people in your lives may stay the same, relationships are often forever altered. Frequently, those changes are for the better, but just as often, they are not. It is not uncommon for grieving parents to see people and relationships in new and surprising ways after the death of their baby. The people are the same, but a slight turn of events, even words, can shift lives and relationships into something else entirely.

All things turn and spin and change, endlessly rearranging themselves

Again, how perfectly does that fit with the way grief evolves and in the process, transforms the grieving parent and often everything about the bereaved parent’s life? Grief is made up of so many different emotions and thoughts, and they are ever changing, not only from one week or day to the next, but often from one hour or minute to the next. Again, the pieces of your life likely stay the same, the people involved may stay the same, but they are constantly rearranged into different patterns based on seemingly innocent situations. One day, grief may be triggered by a song on the radio, another day that song may not have an impact, but a random encounter in the grocery store can bring you to your knees. A loved one who you were once close to may be unsupportive and irritated with the way you are grieving, yet a mere acquaintance may pleasantly surprise you with kindness, compassion and concern. This rearranging of the usual order of your life can make you feel out of sorts, confused and frustrated.

Change evolves from chaos

Is there anything more chaotic and upsetting to the routine of one’s life than the death of a child? I think not. Some of the most profound changes that a person can undergo are those that occur after the death of a baby. Your life may have felt neat and tidy, going according to plan, when your whole world was abruptly and violently shaken, turned upside down--crushed and destroyed. Your life and world likely seem chaotic with everything out of control, and profound changes will inevitably occur.
I found this especially meaningful when thinking of bereaved parents:

The patterns of a kaleidoscope, a succession of interlinkings, are unified into one whole. Each piece is a vital part of that whole, no matter how small. Take one piece away and the image is not quite the same.

I pondered that one for quite some time.
Using that image, a kaleidoscope is not only a metaphor for grief, but also for the entire experience of life after the death of a baby. If one were able to pop open a kaleidoscope and remove a piece then put it back together, that kaleidoscope would never again be the same, though from the outside, it would appear unchanged. After the removal of that one piece, no matter what pattern is created after each twist and turn, that missing piece will forever affect the entire kaleidoscope. While beautiful patterns will still be created, they will always be different than what would have been created had that one tiny piece not been removed. Your baby, no matter how small, will always be a vital, missing piece of your whole. You and your family may look the same from the outside, as if you have been “put back together.” Yet, while the pieces of your life will change and evolve in many different ways, sometimes beautiful, amazing, breathtaking ways, there will always be one crucial piece missing that will forever affect the whole of your life. While there will still be lovely moments, moments of peace, even moments of joy, that missing piece has forever changed your kaleidoscope.
I want to end this with something I read in one of the articles that I find especially significant. The author wrote:

The tumbling pieces are held together by a protective circle.

Again, I found that applicable to the experiences of a grieving parent. The protective circle, which typically has a huge impact on the ways a bereaved parent grieves, begins to heal and eventually finds new hope is formed by your loved ones. Your protective circle also will evolve and change as time goes on. It’s not uncommon for those who were supportive and enveloping with their compassion for you to fade away and be replaced by someone new, maybe a support group or new friends who have been where you are, someone who becomes an integral part of your protective circle. That protective circle is a crucial part of your story, of your baby’s story, of your ever-changing yet still beautiful kaleidoscope.

Friday, July 25, 2014

My Miscarriage: Coping {Part Two of Two}

This article was submitted by New Orleans Moms Blog and written by Amanda Bensabat. 


My Miscarriage: Coping {Part Two of Two}

by  on JULY 23, 2014 in BABIESINFERTILITY & MISCARRIAGEPREGNANCY - 

baby3pt2finalI know my last post was not a happy one as I wrote a letter to the baby I will never hold. But this thing that happened to me, I have learned, will be something I carry for the rest of my life. Sure, the sharp, painful edges will blur and soften with time, but the wound will never heal completely. I feel compelled to follow up on my previous post after so many of you reached out to me. High school friends and acquaintances who I have not spoken with in years were sharing their personal stories of similar grief. I had no idea that so many women I knew had experienced what left me feeling so isolated and alone.

To continue reading... visit HTTP://WWW.NEWORLEANSMOMSBLOG.COM/2014/07/23/REFLECTIONS-ON-MY-MISCARRIAGE/ 

Wednesday, July 23, 2014

Traveling with Memories


This article was written and submitted by Share board member Meredith Byers.  


Summer is beginning, and many families are making vacation plans - either to travel somewhere by car or plane, or to enjoy a "staycation" and take in a local activity. Our family's summer plans include travel in Missouri as well as Texas, and like many Share families, our plans include a time to make memories with both our living children and our angel Samuel.

Our son Samuel was born still in April 2007. Before that time, our vacations were usually excursions for rest and relaxation, a new adventure or experience, or a working trip with some sightseeing and good food squeezed in. After Samuel's delivery, everything in our world, including our future travels, changed dramatically. Derek and I grieved intensely for weeks after coming home from the hospital without Samuel. We eventually began to realize that we needed to "get away" just for a little while to gain some shelter from the storm of feelings that were controlling our lives. Our oldest son, Wyatt, was 2 and loved trains, so we traveled to Colorado over Memorial Day weekend to explore and ride trains there. We brought our new camera, meant to be filled with photos of a new baby, and instead filled it with photos of us riding a train through Freemont, CO, in the snow (we weren't expecting snow in May!). This trip was our chance to hide in a world that wasn't raw with feelings for Samuel for a few days and hunker down with just ourselves. When we returned home, I made a photo book of the Colorado train ride for Wyatt to enjoy. When I look at that book now, it's filled with memories for me - I look swollen in my postpartum state, Derek looks tired and worn, and Wyatt's chubby cheeks are lit with excitement from the ride. I can still feel Samuel in those pictures.

Since then, we haven taken many trips as a family for various reasons, and each time we try to do something or find something that reminds us of Samuel. We have found a seashell on a South Carolina beach, a handmade bowl from a market in Georgia, an Asian ornament in San Francisco, and a Zuni mother-of-pearl butterfly from Santa Fe. Samuel is our butterfly, and we often look for butterflies and butterfly objects in our travels. We feel like Samuel is with us when we see a butterfly, and Derek feels closest to Samuel when he is outdoors under a blue sky. We have many butterflies on our shelves, our walls, and even in Samuel's garden in our backyard to remember him.

We have been blessed with two more living children since we lost Samuel, and all three kids enjoy looking for special treasures on our trips to put on Samuel's shelf when we get home. They recognize that these items are part of our family and part of our memories, and they value these objects and their meaning as much as I do. Our daughter Shiloh feels a special connection to butterflies also. On our recent visit to the Laumeier Art Fair on Mother's Day, she picked out a small drawing of a butterfly for her room. I think that she feels the memory of Samuel in this drawing. Our youngest, Ryder, is filled with charm and mischief, and his treasures usually reflect his spirit of play - a ball, a well-loved toy, even a shiny coin - and remind me of his angel brother.

We are driving to Branson today for a long Father's Day weekend vacation - we will do a little boating and fishing on Table Rock Lake, enjoy some amusement park fun at Silver Dollar City, and snuggle up around a campfire. Most importantly we will be looking for a treasure to remind us of our family. We will celebrate our living children, mourn our angel baby, look for butterflies, and make memories for now and always. 

Wednesday, July 16, 2014

Accepting submissions for the upcoming magazine...

We are now accepting newsletter submissions for the September/October edition. The topic is "When Children Grieve." The deadline is August 15.

While children may grieve just as intensely as adults, they are often called the "forgotten grievers." When their baby sibling dies, they may experience a myriad of emotions and reactions to the death. This issue will share ways families have helped their child move through his/her grief, including the difficulties. Parents are encouraged to share their children's art projects, writings and/or poems and other creative ways their children have dealt with their sibling's death. Finally, if you are a professional who works with grieving children, we would like to share any tips or words of wisdom you have to offer grieving parents.

If anyone is interested in submitting for this issue, please email Rose Carlson, rcarlson@nationalshare.org.

Thursday, July 10, 2014

Annual Share Walk for Remembrance & Hope

Mark your calendar to join us on 

October 18, 2014 
for the
13th Annual National 
Share Walk 
for Remembrance & Hope
at Creve Coeur Park 
in Saint Louis, MO



8:00 a.m.       Day-Of Registration Opens

9:00 a.m.       Creation Station Opens

11:00 a.m.      Memorial Service & Balloon Release

12:00 p.m.     Walk
Angels in the Crowd: Unable to attend? Participate in the Share Walk as an Angel in the Crowd and receive a t-shirt and program.

1-Mile Walk: All walkers, including families, first-time walkers and recreational walkers are welcome to enjoy a peaceful walk by the lake in Creve Coeur Park.

4-Mile Walk: Enjoy higher levels of fitness with this non-competitive walk/run around the lake and through the wooded paths in Creve Coeur Park.

1:00 p.m.       BBQ Picnic Lunch
Hamburger and hot dog barbeque lunches can be purchased on the registration form.  You will have the option to buy lunch on-site, but we encourage pre-ordering to guarantee availability.

For more info or to register, visit http://www.nationalshare.org/walk.html 

Monday, June 30, 2014

July/August Newsletter is Available

The July/August Sharing magazine is now available! The topic is Getting Away and provides articles and stories from bereaved parents about vacationing after their loss. The issue really has some wonderful articles, which we hope bring you comfort and hope for the future.

To view the PDF, visit http://www.nationalshare.org/JulyAugust.pdf

Am I Really A Mother?


This beautiful article was written and submitted to Share by: Marie L. Davis Caldwell

Spring will forever hold a new meaning for us. This time of new life will now remind us of how our daughter never got the chance to live hers here on this Earth.

Olivia was born still after an induction three months early. Due to the tightly twisted cord that stunted her growth, she was small for six months gestation, but no less beautiful and no less our child. However, days after her birth came Mother’s Day. As I listened to the sweet children sing to their mothers at church, I thought of how our Livy would never be singing to me. As they gave out gifts to the mothers, including me, I wondered if I really was a mother.

When we returned home, my husband helped to set me straight. He gave me two cards—one from him and one from Olivia. In each was a note he wrote from them. “Momma, thank you. You took the very best care of me while I was in your belly. What a wonderful Momma you are.” The other read, “Dear wife, I witnessed the most loving person I had ever seen...you were truly born to be a mother.” These words assured me that, YES! I am a mother.

I was reminded of all those pregnancy days when I talked to her and sang to her and rocked her in her nursery. I was reminded of how I was willing to do anything so she could be born beautiful and whole to be buried properly in a lovely place. No one other than a mother could feel this overwhelming love you have for that tiny little person you held in your hands. No one other than a mother could grieve as hard as you have. YES! You are a mother! YES! You are a father! And, YES! You should celebrate your day. Include your child’s birthstone in your mother’s ring. Include his or her name in your list of children when people ask, even if you only have one as we do. Parenthood is not just holding your child in your arms. Parenthood is loving that child more than you love your life. Countless thanks and endless love to my dear husband, and Olivia’s wonderful father, Doug, who has been my sole personal support through my continuing journey of healing. In memory of our awe-inspiring daughter Olivia. We love you darlin’. 

Monday, June 16, 2014

VOTE now for the 2014 Share Walk for Remembrance & Hope logo

Vote for the 2014 Share Walk for Remembrance and Hope logo by selecting the "Like" button of the logo you like best. You may only like each logo once however you may like more than one!  Voting will be closed Friday June 20, 2014 at 12pm CST.

https://www.facebook.com/pages/Share-Pregnancy-Infant-Loss-Support-Inc/112835372099879?ref_type=bookmark

Tuesday, May 20, 2014

A Special Dedication… To You, On Mother’s Day and Father’s Day



This article was written and submitted to Share by Lisa Weber, RN, for the Mother's Day/Father's Day edition of the Sharing Magazine. 
 
Society, in general, is experiencing an evolution in recognizing the significance of the loss parents and families feel when an unborn child dies. From our silent tears of pain to our shouts of anger and resentment, bereaved families are making others sit up and take notice of our grief. The impact of the death of an unborn child is not going unnoticed by those open enough to bear witness to our struggle. Mothers, fathers, sisters, brothers, grandparents, whose empty arms long to hold a live baby, whose voices speak of the sadness of death, whose minds sometimes wander off to dreams of cooing babies, whose nurseries remain untouched and whose lives will always remember the promise of new life, are testimony to this struggle. 

The journey through grief is filled with ups and downs. The “up” moments don't seem to come around often enough. The “down” moments are exhausting and seem to last for days. Bereaved parents are forced to learn patience. You can't rush grief; the healing process takes time. We learn ways to accept, embrace, and even understand that death is a part of our lives. Grieving moms and dads do not “get over” their loss.

We do not deny our feelings; we learn to incorporate them into our lives. Gradually, we focus on our future, as a person, as an adult, and always as a parent.

Our identity is determined by many factors:  What we do, the job we have, where we live, and many more factors. For some, being a parent is a major part of our identity. There are those of us who have no living children. I do not believe that makes us any less parents. We nurture our children even before they are conceived. We have dreams of the glow of pregnancy, delivering a healthy baby, the impact a child will have on us as a family, as partners raising a toddler to young adulthood. We nurture the expectations of parenthood, of being called “mommy” and “daddy.” Even though the differences in a family who have experienced death and those who have not are complex, the similarity of our desire to raise a family cannot be denied.

I have a son. I have a daughter. I am a mother. I am a father. I do not take my child to the park like some parents do—but I take my baby everywhere in my heart. She was denied this earthly existence. I don't know why. He will play catch in the stars, not on the ball field. She will never shop for a prom dress at the mall, and he will never ask for the keys to my car. But they are our children nonetheless. I will wear her birth stone around my neck. I will think of him everyday.
 
Acknowledge me on Mother's Day. Wish me a pleasant Father's Day. I need that support and acceptance as much as you. I am a parent. Mother's Day is to honor all mothers. Father's Day is to honor all fathers. As spring brings forth new life following the quiet healing of winter, let us welcome a rebirth of hope in our own lives. In recognition of childless parents, and those who have loving children but also have felt the heartache of the death of a child, this Mother's Day and Father's Day, my wish for you is one of peace, love, and to call to mind the dignity of parenthood. Share this newsletter with family and friends. It may help others understand our struggle to be recognized as unique parents.

Latest Share Newsletter: Mother's Day & Father's Day

The May/June edition of Sharing is now available! 

This edition provides stories from bereaved parents and professionals on how to honor yourself and your baby on Mother's Day and Father's Day, as we continue to navigate throughout each stage of grief. Please take a moment to read this edition of our magazine or pass along to those who may benefit from its contents.

http://www.nationalshare.org/MayJune.pdf

Monday, May 19, 2014

Return to Zero

RETURN TO ZERO is a drama, based on a true story, about a successful couple, Maggie and Aaron Royal, who are preparing for the arrival of their first child, a son. Just weeks before their due date they are devastated to discover that their baby has died in the womb and will be stillborn.



Maggie and Aaron attempt to go on with their lives as before but cannot escape their postpartum grief. They come to realize that their lives and relationship have been forever altered by this loss. They try to cope in a myriad of ways -- through denial, escape, and alcohol -- but when Maggie discovers that Aaron is having an affair with a co-worker, she decides to end the marriage.

Just when Maggie believes she has started a new life, she discovers that she is pregnant again by Aaron. With the help of her empathetic doctor who had experienced a similar loss years ago, Maggie finally grieves for the loss of her son. Through a turbulent and terrifying pregnancy, Maggie and Aaron reunite to see their child, a daughter, safely into the world.

Click here for more information! 

Here is a link to a great discussion and journal guide to begin conversation. 

Saturday, April 26, 2014

The 19th International Perinatal Bereavement Conference is quickly approaching

Mark your calendars!
The International Perinatal Bereavement conference in San Antonio is quickly approaching (November 6 - 9)! Registration is scheduled to open on May 1st, so stay tuned. In the meantime, visit PLIDA's conference website for the latest information!
www.perinatalbereavementconference.org

Friday, April 11, 2014

30 Days of Share - We Need Your Help!

Please take a moment to watch this video from bereaved parents, Share's Executive Director and the importance of this campaign, Because No One Should Go Through It Alone. 

http://www.youtube.com/watch?v=g8GbtxNiTi8

We are asking for your support in raising $5,000 to fund imperative perinatal bereavement training videos!

The development of this format will give thousands of nurses, chaplains, social workers and other healthcare professionals access to this important evidence-based training opportunity. In turn, patients will receive skilled care before, at the time of, and following the death of a baby.

As the remaining days of this campaign approach, we ask for your support and the support of your friends, family and co-workers. Even the smallest donation can help so many families that will face the hardest days ahead. If you decide to donate, please note on the donation payment page, an "Optional Processing Fee" defaults to a % of your donation. You can change that fee to $0, so more of the donation goes to Share.

We thank you for your continued support and generosity!

http://www.crowdrise.com/nationalshare2/fundraiser/nationalshare

Tuesday, April 1, 2014

Adjusting to Everyday Triggers



This submission was provided by Share's Board Member, Michelle Foster.
 
Car Stickers
Before I had children, I always thought of myself as being the type of mom to have those family stickers on the back of my SUV (not minivan!). A daddy and a mommy. Then kid stickers that would start as babies then grow into toddlers, children and finally the kids’ chosen sport-adorned teenagers. I couldn’t picture what being a mother would be like, but I could definitely picture the stickers.

And there were always two kids’ stickers on the back of the car. So what happens when you have two children, but one of them is in Heaven? The car stickers are not an option now. How would I represent my angel, Chase, on the car? Do they make angel baby stickers? If they did, wouldn’t that be extremely depressing to not watch his sticker grow next to my son Evan’s?

The answer to that question is obviously “yes.” There is nothing more soul crushing than losing a child. The car sticker scenario is just one of the things I grapple with as I grieve. It represents a whole host of things that are different than I ever thought they would be.

Birthdays, for instance. When I found out I was having twins, it was a shock. But when it sinks in, you start to think about what life is going to be like with two babies. And now, all that is gone. On Chase and Evan’s birthday, we will visit a cemetery. We will “celebrate” Chase’s birthday through tears and heartache, never feeling for one second like it should feel on that day. I will do my best to separate those emotions so that Evan gets the true joyful birthday celebration he deserves. But the broken expectations of those days will always be there.  

One of the other things I would think about after finding out about twins was going to the grocery store. That probably sounds a bit weird. But I always wondered if we’d have to have two shopping carts. I’d thinking about my husband and me wheeling both kids around the store. One cart will suffice now.

When you start to develop expectations of your life with your child(en), when those things don’t come true, it’s just a constant reminder of your loss. Nothing ends up how you thought it would be. Whether you lose a baby at 10 weeks or if you lose him at one month old, there was time where you dreamed of your new life.

After a loss, you work on building new expectations. And while they’ll never be the same, they can be great. I tell myself that they will be great, though it’s hard to believe sometimes.

Roller Coaster: Waves of Grief
Both of my sons started out their lives in the NICU, Chase passing away there after 30 days and Evan coming home to us 12 weeks later. They have some stock lines they like to use in the NICU. When you first enter there, they talk about how much of a “roller coaster” it is. In my experience, this is a horrible representation.

Think about a roller coaster. You hear the click click click and develop an exhilarating anticipation for what’s to come. Then as you reach the top, you start your descent. There were a lot of descents in the NICU, but there weren’t a lot of exciting and happy moments of anticipation. Most of the anticipation is full of fear and doubt.

For me, one of those moments of anticipation didn’t end with any upswing. It ended with me losing my first born son. Not a roller coaster.

I would say that the roller coaster metaphor better fits my experiences after my loss. I have Evan and he gives me joy…He takes me to the top of the mountain. I am fortunate to be able to separate my feelings about losing Chase from the happiness I get from Evan.

But still, I’m only one person, so it’s nearly impossible to feel dual emotions. One minute, I’m marveling at Evan and the next, I start the rapid descent to despair when the gravity of losing Chase hits me.

Downward, so quickly, to a place where there’s nowhere to go but up. Most times, up doesn’t come as quickly as I would like.

When you experience the loss of a child, the ride never stops. I hear from other bereaved parents that it will change over time, but still – we’re strapped in until the end. Riding this ride that we never thought we’d be on …We didn’t get in this line. For some of us, we never fathomed this ride even existed.

Nevertheless, I’ll ride this never-ending roller coaster and pray for more ups and fewer downs.


The Unfortunate Truth About Tax Season
My husband and I just did our taxes. We lost our son, Chase, at one month old last year. I experienced an intense wave of grief first when I realized Chase would be on 2013’s return as a dependent. My baby is on my tax return. He existed. He was here with us, even if for a short period of time. Too short.

My second, even larger, wave of grief came when I realized that he won’t be “counted” on 2014’s return. It feels like Uncle Sam is playing a cruel joke on me. He was here, now he’s not. Here’s another reminder (as if I need one) scheduled for April 15, 2015.

But then, when I read the tax rules, I learn that mothers of stillborn babies don’t get to claim their children on their returns. Those babies matter. They have forever changed the world by being here. As have the babies who didn’t make it as long.

The tax process is cold and impersonal. It’s about numbers, not about emotions. Sometimes, numbers are easier to focus on while walking along this empty road. They are steadfast, and sure, you can manipulate them to a point, but they are still rather inflexible.

Then you have your emotions, your feelings, your heart. These things are less steadfast. One day, you can be going along, feeling good (whatever that means). Then the next day, you could struggle to get out of bed. Little things can send you spiraling out of control.

When you mix these two worlds together, “tricky” doesn’t even begin to cover it. When we file our taxes next year, I will have to resist the urge to scream from the rooftops that I have two children, not one. Yet another tangible reminder of my loss. And just because he’s not here, doesn’t mean he’s not real. It doesn’t mean he doesn’t have a continuous impact on the world.


Luck?
Do you ever feel lucky? There is probably a small distinction between being lucky and being blessed. I know I’m blessed. But I don’t feel lucky.

It’s weird to think about being lucky in the context of life in general. You play blackjack and hit an ace king. That’s pretty lucky. You win the 50/50 at trivia night. Exciting moment. But in life, is there luck?

I would guess a lot of people that utilize Share’s great services and support don’t feel lucky. If we were lucky, we’d have our babies with us. If we were lucky, we wouldn’t have the unfortunate benefit of perspective that no matter how bad things seem, they can always get worse.

I certainly didn’t feel lucky when I held my son as he left this earth, And despite all of the blessings that have happened to us since his passing, his twin brother’s health, my husband’s promotion, our beautiful home, I still don’t feel like there’s any luck in my corner.

I guess that’s why I’m glad I draw the distinction of blessings and luck. I can see my blessings every day, even if they look blurry through my tears. Right now, I understand that the 30 days I got to spend with my son, Chase, were a blessing, though serve little consolation for my broken heart. I see a thousand blessings when Evan smiles and a million more when he giggles. My husband is supportive and amazing. He is a blessing to me.

I know you might not feel lucky, but I hope you can find you blessings.